Friday, May 01, 2025 (8:00 AM to 5:00 PM CST)
Neurological Research Institute (NRI) 7th Floor,
1250 Moursund St.,
Houston, TX 77030
Vision
Health Equity for Individuals with Sickle Cell across Texas
Health Equity for Individuals with Sickle Cell across Texas
Mission
To organize a dedicated coalition of key collaborators to equip and empower Texans about sickle cell disease and trait to improve statewide disease awareness, education, and evidence-based care delivery.
To organize a dedicated coalition of key collaborators to equip and empower Texans about sickle cell disease and trait to improve statewide disease awareness, education, and evidence-based care delivery.
Brief Description: Texas Children’s Cancer and Hematology Center is hosting a summit to improve research, outcomes, and policies to promote equitable care for the sickle cell disease community.
The summit will be followed by the 3rd in-person meeting to work on goals and activities for sickle cell disease awareness, education, and care delivery across Texas to further develop the Sickle Cell Statewide Action Plan.
Keynote Speaker Names: TBD
Who: A coalition of key collaborators, under the leadership of the HRSA funded Heartland|Southwest Sickle Cell Disease Network, will come together for the second in-person meeting to continue to work on goals and activities for sickle cell disease awareness, education, and care delivery across Texas to develop a comprehensive and cohesive Sickle Cell Statewide Action Plan.
Why: The average life expectancy for individuals with sickle cell disease (SCD) in Texas is well below the U.S. general and African American populations. There are not enough knowledgeable providers to adequately care for youth and adults with SCD, leading to increased emergency room visits and hospital admissions and decreased quality of life. There is a lack of community awareness about SCD and sickle cell trait (SCT) and a lack of adequate follow-up for families for whom SCT is identified through newborn screening. As a group, people with SCD experience worse health outcomes compared to other diseases and have access to fewer health resources. This lack of equity is a health disparity.
Our Response: Sickle cell advocates, providers, legislators, community-based organizations, and other key collaborators are invited to attend an in-person meeting on Friday, May 10th in Houston, TX. We will continue working on a comprehensive and cohesive Statewide Action Plan to address health disparities affecting Texans with SCD and SCT. We plan to have the Action Plan finalized by July 2024.
Join Us: Plan to join us for the in-person meeting on May 1ist and May 2nd, 2025 in Houston, TX at the NRI. Travel, lodging, and meals for non-local attendees will be covered.
Keynote Speaker Names: TBD
Who: A coalition of key collaborators, under the leadership of the HRSA funded Heartland|Southwest Sickle Cell Disease Network, will come together for the second in-person meeting to continue to work on goals and activities for sickle cell disease awareness, education, and care delivery across Texas to develop a comprehensive and cohesive Sickle Cell Statewide Action Plan.
Why: The average life expectancy for individuals with sickle cell disease (SCD) in Texas is well below the U.S. general and African American populations. There are not enough knowledgeable providers to adequately care for youth and adults with SCD, leading to increased emergency room visits and hospital admissions and decreased quality of life. There is a lack of community awareness about SCD and sickle cell trait (SCT) and a lack of adequate follow-up for families for whom SCT is identified through newborn screening. As a group, people with SCD experience worse health outcomes compared to other diseases and have access to fewer health resources. This lack of equity is a health disparity.
Our Response: Sickle cell advocates, providers, legislators, community-based organizations, and other key collaborators are invited to attend an in-person meeting on Friday, May 10th in Houston, TX. We will continue working on a comprehensive and cohesive Statewide Action Plan to address health disparities affecting Texans with SCD and SCT. We plan to have the Action Plan finalized by July 2024.
Join Us: Plan to join us for the in-person meeting on May 1ist and May 2nd, 2025 in Houston, TX at the NRI. Travel, lodging, and meals for non-local attendees will be covered.
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Registration is now closed.
For more contact information, contact:
Titilope Fasipe, MD, PhD
Site Principal Investigator (Texas), Heartland|Southwest SCD Network
taishola@texaschildrens.org
Titilope Fasipe, MD, PhD
Site Principal Investigator (Texas), Heartland|Southwest SCD Network
taishola@texaschildrens.org
Please visit sicklecell.wustl.edu for more information on the Heartland|Southwest SCD Network.